Archive for June, 2008

h1

But you don’t look sick

June 18, 2008

I just started reading Christine Miserandino’s website, butyoudontlooksick.com.  Love the name. 

 

Her mission statement:

 

“ButYouDontLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and hopes to provide answers to the endless questions of: But you don’t look sick?” 

 

She wrote “The Spoon Theory,” a great two-page essay.  One day, her college roommate asked her what it was like to live with lupus.  Christine reached for the nearest analogy –  yes, it involves spoons.

 

Articulate and moving, definitely worth checking out.  She prefers that people link to her site to read.

 

 

h1

Superwoman says

June 16, 2008

I read this in the LA Times.  It’s about producer Lauren Schuler Donner coming out to the Hollywood community, so to speak, about having lupus.  Such an extraordinary career, such a trailblazer for women.

 

Lately, I’m such a sucker for overcoming adversity stories.  Too much Oprah?

 

 

No secret is as carefully guarded as a celebrity suffering with a chronic illness, but the A-list producer wants to end this conspiracy.

By Tina Daunt
June 13, 2008

LIKE ANY small town, Hollywood has its secrets.

There are affairs, divorces, drug abuse. But no secret is as carefully guarded as a celebrity suffering with a chronic illness. Acknowledging publicly that you’re ill could mean instant unemployment.

Like the DMV, the studios insist that production companies have insurance before anyone steps on the set. If a star is sick enough to cause even the slightest delay in filming on a multimillion-dollar movie, it’s almost impossible to find coverage. It’s almost easier to have all the details of your personal relationships revealed in the tabloids than to admit you’re battling an ongoing illness.

A-list producer Lauren Shuler Donner wants to end this conspiracy of silence and discrimination.

Over the last two decades, she has produced some of Hollywood’s most popular — and profitable — films, including “Pretty in Pink,” “St. Elmo’s Fire,” “Dave,” “Mr. Mom,” “Free Willy” and all the “X-Men” movies.

And she did it all while battling the autoimmune disease lupus, as well as breast cancer.

“I know there’s a stigma that has made it hard for people to acknowledge it, if they’re sick,” said Donner, who was cured of her cancer but is still living with lupus. “I didn’t tell anyone I had lupus for many, many years, and I didn’t tell anyone I had cancer.

“I was afraid no one would hire me, and I also felt it was deeply personal. It was nobody’s business. Now, of course, my feelings have changed.”

Because of that change, she has become an outspoken proponent for lupus awareness and treatment. Last month, she was honored for her efforts by Lupus LA, a group founded by Donner’s doctor, Daniel J. Wallace, whom the producer credits with helping her cope with the chronic and potentially fatal disorder.

“I wanted to tell people you can live a full life, even if you’re not feeling well,” said Donner, who is working on seven films at the moment — including more “X-Men” movies and a screen version of “The Secret Life of Bees” — and will receive her star on the Hollywood Walk of Fame in October. “You can learn how to achieve on the same level as someone who is not handicapped by their health.”

Donner said she was diagnosed with lupus, which creates a toxic stew of antibodies that can attack virtually any healthy organ or tissue, more than 20 years ago.

“When I was in my 20s, I was always sick,” Donner said, sitting comfortably on a plush couch at her Beverly Hills production company. “I was always feeling exhausted. I had a fever all the time, and no one could diagnose me.”

Finally, she found Wallace, who recognized her illness and gave her the treatment necessary to live. All the while, she continued to work, making film after film in an industry that doesn’t always value female producers, let alone ones quietly battling disease.

Getting through it required Donner to change the way she lived. She learned to meditate, stay on her treatment, control her stress level and eat right. She admired celebrities such as Melissa Etheridge, who worked bravely in the public eye while battling breast cancer. It prompted Donner to also speak out about her condition, which she has started to do increasingly in recent months.

But holding up her record as one of Hollywood’s most successful and prolific producers, perhaps she can help change minds in the industry’s executive suites.

“Almost everyone I know is battling something, whether it’s allergies or depression,” she said. “Whatever it is, it makes you feel less than who you are. I believe part of life’s challenge is to work through that.

“I want to show people that you can still live a life. You don’t have to be defeated by illness.”

**********

The article probably means more to me because I live in LA, and I’m just starting my career as a writer.  There’s plenty of normal (non-entertainment industry) people here, too.  But for me and my friends, we’re all trying so hard to build our careers.  We’re all young writers, directors, producers, cinematographers, actors.  And for us, it’s scrabbling time.  It’s like — it’s a hard enough goal without having health limitations.  I want to take care of my work, not myself!

 

Anyway, thanks Lauren.  This just really spoke to something I’ve been thinking about a lot — I get how to have a life while being ill, I’m still figuring out how to have an ambitious life. 

 

h1

Dragon turns 10!

June 2, 2008

When I stopped being able to type 10 years ago, it was a dark, dark time.  I’d always wanted to be writer, and suddenly, I couldn’t write.  And not only was I scared about giving up my dream, I didn’t know how I would keep a normal job, any job, if I couldn’t use a keyboard.  

 

Then I started using voice recognition software, Dragon NaturallySpeaking.  It’s a lifesaver, plain and simple.  I can write, search the web, etc. purely through voice commands. Don’t know what I’d do without it.

 

In any case, Nuance, the company that puts out the software, is throwing a contest.  In honor of their 10th birthday, they want to hear how you use Dragon NaturallySpeaking.

 

http://www.nuance.com/dragonstories/

 

I saw this and thought, cool, I like contests.  I like prizes.  My life is kind of interesting.  Maybe I have a shot.  Then I started reading. 

 

After the very first post, I gave up on the contest side of things.  Yeah, my life has its difficulties, but I was so impressed and humbled by what I read.  There are so many extraordinary life stories posted.  I really recommend checking it out. 

 

Here’s my favorite entry from Chuck Z.:

“Project Valour-IT began when I was wounded by an IED while serving as commander of a tank company in Iraq in June 2005. During my deployment I kept a blog, relating insightful stories of my experiences, and sharing self-deprecating humor. After I was wounded, my wife continued the blog, keeping my readers informed of my condition.

 

As I began to recover, I wanted to return to writing, but serious hand injuries hampered my typing. When a loyal and generous reader bought me a copy of the Dragon Naturally Speaking Preferred (7.0) software, other readers began to realize how important such software could be to my fellow wounded soldiers and started to cast about for a way to get it to them.

 

Patti Patton Bader from SoldiersAngels (www.soldiersangels.org) contacted me and we shared a vision of providing laptops with voice-controlled software to wounded soldiers whose injuries prevented them from operating a standard computer. Soldiers Angels offered to help develop the project, and Project VALOUR-IT was born. (Voice Activated Laptops for OUR Injured Troops)

 

For the last three years, I have not only used Dragon NaturallySpeaking to work, (I continue to serve in the Army) play (I continue blogging at tcoverride.blogspot.com) but I also use your software in charity work. So far, we’ve raised the funds to donate over three thousand laptops with this software to our wounded service members who’ve suffered brain, hand, and/or eye trauma and would otherwise be “disconnected” from today’s world. The use of your software to use a computer, to connect, to do something that I was able to do before I was injured made me feel somewhat whole, somewhat normal, for the first time. It has been my distinct pleasure and honor to give that feeling, a feeling of ability, to our wounded. Dragon has not only improved my life, it has changed my life.”